Since then, he has been weened down slowly every 12 hours and if all continues to go well, he will be off the oxygen permanently tomorrow at this time. Go Mickey! You can do it! They also started feeding him again with super thick formula and he is doing well. They took his feeding tube out today! So, his goals are to get off the oxygen tomorrow, keep the feeding tube out by eating his full amount of food every 3 hours on his own (this is going to be tough as it takes a lot of energy) and no heart rate drops in 5 days and our little boy can come home. It sounds easy right? Its not. He is so close, but.... it wont be easy for him. I promise him every day that one day soon everything wont be so hard.
Jolynne has blown everyone away. She is tolerating her full feeding, but they wont take her IV out until she gains 25 grams or more for three days in a row. You might think this would be easy. But its not. She gained the last two nights but lost tonight, so we start over again. She is so so close, but....
Two months ago we all would have said Jolynne will be home last, then the past couple weeks all I have heard is that she will be home in no time at all and that Mickey has a ways to go. After today, I wonder will Mickey make it home before his sister? Its a race to the finish line. They are both so close, but still have these little hills they must climb first. For me it is the same roller coaster as always. Lately I have been so optimistic because they both are doing so well. I am so proud of my baby's. They have come so far from October 26th. They are right there! On the other hand, its tough being so close and having to wait one more week, one more day, one more second.. Its like anything else related to time I guess, the closer you get to it, the further away it seems to be. I just want them home. It seems silly to me at times that Jo stay in the hospital just because she needs to gain more weight. She can breath, she can eat, why does she need to stay? Well, they have good reason I guess, I try to remember that they are doing what is best for her.
This makes it all worth it!